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Klippel-Trenaunay Syndrome (KTS) Organizations

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Vascular Birthmarks Foundation
P.O. Box 106
Latham, NY   12110
hvbf@aol.com
http://birthmark.org
Tel: 877-VBF-4646 (823-4646)

Sturge-Weber Foundation
P.O. Box 418
Mt. Freedom, NJ   07970
SWF@sturge-weber.org
http://www.sturge-weber.org
Tel: 973-895-4445 800-627-5482
Fax: 973-895-4846

National Organization for Rare Disorders (NORD)
55 Kenosia Avenue
Danbury, CT   06810
orphan@rarediseases.org
http://www.rarediseases.org
Tel: 203-744-0100 Voice Mail 800-999-NORD (6673)
Fax: 203-798-2291