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Joubert Syndrome Organizations

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Joubert Syndrome Foundation & Related Cerebellar Disorders
414 Hungerford Drive
Suite 252
Rockville, MD   20850
info@jsfrcd.org
http://www.jsfrcd.org
Tel: 614-864-1362

The Arc of the United States
1825 K Street, NW
Suite 1200
Washington, DC   20006
Info@thearc.org
http://www.thearc.org
Tel: 202-534-3700 800-433-5255
Fax: 202-534-3731

National Organization for Rare Disorders (NORD)
55 Kenosia Avenue
Danbury, CT   06810
orphan@rarediseases.org
http://www.rarediseases.org
Tel: 203-744-0100 Voice Mail 800-999-NORD (6673)
Fax: 203-798-2291