Joubert Syndrome Organizations

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Joubert Syndrome Foundation & Related Cerebellar Disorders 414 Hungerford Drive Suite 252 Rockville, MD   20850 info@jsfrcd.org http://www.jsfrcd.org Tel: 614-864-1362	The Arc of the United States 1825 K Street, NW Suite 1200 Washington, DC   20006 Info@thearc.org http://www.thearc.org Tel: 202-534-3700 800-433-5255 Fax: 202-534-3731
National Organization for Rare Disorders (NORD) 55 Kenosia Avenue Danbury, CT   06810 orphan@rarediseases.org http://www.rarediseases.org Tel: 203-744-0100 Voice Mail 800-999-NORD (6673) Fax: 203-798-2291