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Holoprosencephaly Organizations

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Carter Centers for Brain Research in Holoprosencephaly
c/o Texas Scottish Rite Hospital P.O. Box 190567
2222 Welborn Street
Dallas, TX   75219-9982
Tel: 214-559-8411 800-241-1121, ext. 8411
Fax: 214-559-8383

National Organization for Rare Disorders (NORD)
55 Kenosia Avenue
Danbury, CT   06810
Tel: 203-744-0100 Voice Mail 800-999-NORD (6673)
Fax: 203-798-2291

The Arc of the United States
1825 K Street, NW
Suite 1200
Washington, DC   20006
Tel: 202-534-3700 800-433-5255
Fax: 202-534-3731

March of Dimes
1275 Mamaroneck Avenue
White Plains, NY   10605
Tel: 914-997-4488 888-MODIMES (663-4637)
Fax: 914-428-8203