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Holoprosencephaly Organizations

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Carter Centers for Brain Research in Holoprosencephaly
c/o Texas Scottish Rite Hospital P.O. Box 190567
2222 Welborn Street
Dallas, TX   75219-9982
hpe@tsrh.org
http://www.carterdatabase.org/hpe/
Tel: 214-559-8411
Fax: 214-559-8383

National Organization for Rare Disorders (NORD)
55 Kenosia Avenue
Danbury, CT   06810
orphan@rarediseases.org
http://www.rarediseases.org
Tel: 203-744-0100 Voice Mail 800-999-NORD (6673)
Fax: 203-798-2291

The Arc of the United States
1825 K Street, NW
Suite 1200
Washington, DC   20006
Info@thearc.org
http://www.thearc.org
Tel: 202-534-3700 800-433-5255
Fax: 202-534-3731

March of Dimes
1275 Mamaroneck Avenue
White Plains, NY   10605
askus@marchofdimes.com
http://www.marchofdimes.com
Tel: 914-997-4488 888-MODIMES (663-4637)
Fax: 914-428-8203