Epilepsy Organizations

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Citizens United for Research in Epilepsy (CURE) 223 W. Erie Suite 2 SW Chicago, IL   60654 info@CUREepilepsy.org http://www.CUREepilepsy.org Tel: 312-255-1801 800-765-7118 Fax: 312-255-1809	Epilepsy Foundation 8301 Professional Place Landover, MD   20785-7223 postmaster@efa.org http://www.epilepsyfoundation.org Tel: 301-459-3700 800-EFA-1000 (332-1000) Fax: 301-577-2684
Family Caregiver Alliance/ National Center on Caregiving 785 Market St. Suite 750 San Francisco, CA   94103 info@caregiver.org http://www.caregiver.org Tel: 415-434-3388 800-445-8106 Fax: 415-434-3508	National Council on Patient Information and Education 200-A Monroe Street Suite 201 Rockville, MD   20850 ncpie@ncpie.info http://www.talkaboutrx.org Tel: 301-340-3940 Fax: 301-340-3944
National Family Caregivers Association 10400 Connecticut Avenue Suite 500 Kensington, MD   20895-3944 info@thefamilycaregiver.org http://www.thefamilycaregiver.org Tel: 800-896-3650 Fax: 301-942-2302	National Organization for Rare Disorders (NORD) 55 Kenosia Avenue Danbury, CT   06810 orphan@rarediseases.org http://www.rarediseases.org Tel: 203-744-0100 Voice Mail 800-999-NORD (6673) Fax: 203-798-2291
International RadioSurgery Association 2960 Green Street P.O. Box 5186 Harrisburg, PA   17110 irsa@irsa.org http://www.irsa.org Tel: 717-260-9808 Fax: 717-260-9809	Charlie Foundation to Help Cure Pediatric Epilepsy 515 Ocean Avenue Suite 602N Santa Monica, CA   90402 ketoman@aol.com http://www.charliefoundation.org Tel: 310-393-2347 Fax: 310-453-4585
Epilepsy Therapy Project P.O. Box 742 10. N. Pendleton Street Middleburg, VA   20118 info@epilepsytherapyproject.org http://www.epilepsy.com Tel: 540-687-8077 Fax: 540-687-8066	Antiepileptic Drug Pregnancy Registry Massachusetts General Hospital 121 Innerbelt Road Room 220 Somerville, MA   02143 info@aedpregnancyregistry.org http://www2.massgeneral.org/aed/ Tel: 888-AED-AED4 (233-2334) Fax: 617-724-8307
Dravet.org P.O. Box 66599 Baltimore, MD   21239-6599 info@Dravet.org http://dravet.org Tel: 866-828-1843	Intractable Childhood Epilepsy Alliance PO Box 365 6360 Shallowford Road Lewisville, NC   27023 info@ice-epilepsy.org http://www.ice-epilepsy.org Tel: 336-946-1570 Fax: 336-946-1571
Hope for Hypothalamic Hamartomas (Hope for HH) P. O. Box 721 Waddell, AZ   85355 admin@hopeforhh.org http://hopeforhh.org/	RE Children's Project 79 Christie Hill Road Darien, CT   06820 swohlberg@rechildrens.com http://www.rechildrens.org Tel: 917-971-2977
LGS Foundation 192 Lexington Avenue Ste 216 New York, NY   10016 info@lgsfoundation.org http://lgsfoundation.org/index.html Tel: 212-802-1401