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Epilepsy Organizations

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Citizens United for Research in Epilepsy (CURE)
223 W. Erie
Suite 2 SW
Chicago, IL   60654
info@CUREepilepsy.org
http://www.CUREepilepsy.org
Tel: 312-255-1801 800-765-7118
Fax: 312-255-1809

Epilepsy Foundation
8301 Professional Place
Landover, MD   20785-7223
postmaster@efa.org
http://www.epilepsyfoundation.org
Tel: 301-459-3700 800-EFA-1000 (332-1000)
Fax: 301-577-2684

Family Caregiver Alliance/ National Center on Caregiving
785 Market St.
Suite 750
San Francisco, CA   94103
info@caregiver.org
http://www.caregiver.org
Tel: 415-434-3388 800-445-8106
Fax: 415-434-3508

National Council on Patient Information and Education
200-A Monroe Street
Suite 201
Rockville, MD   20850
ncpie@ncpie.info
http://www.talkaboutrx.org
Tel: 301-340-3940
Fax: 301-340-3944

National Family Caregivers Association
10400 Connecticut Avenue
Suite 500
Kensington, MD   20895-3944
info@thefamilycaregiver.org
http://www.thefamilycaregiver.org
Tel: 800-896-3650
Fax: 301-942-2302

National Organization for Rare Disorders (NORD)
55 Kenosia Avenue
Danbury, CT   06810
orphan@rarediseases.org
http://www.rarediseases.org
Tel: 203-744-0100 Voice Mail 800-999-NORD (6673)
Fax: 203-798-2291

International RadioSurgery Association
2960 Green Street
P.O. Box 5186
Harrisburg, PA   17110
irsa@irsa.org
http://www.irsa.org
Tel: 717-260-9808
Fax: 717-260-9809

Charlie Foundation to Help Cure Pediatric Epilepsy
515 Ocean Avenue
Suite 602N
Santa Monica, CA   90402
ketoman@aol.com
http://www.charliefoundation.org
Tel: 310-393-2347
Fax: 310-453-4585

Epilepsy Therapy Project
P.O. Box 742
10. N. Pendleton Street
Middleburg, VA   20118
info@epilepsytherapyproject.org
http://www.epilepsy.com
Tel: 540-687-8077
Fax: 540-687-8066

Antiepileptic Drug Pregnancy Registry
Massachusetts General Hospital
121 Innerbelt Road Room 220
Somerville, MA   02143
info@aedpregnancyregistry.org
http://www2.massgeneral.org/aed/
Tel: 888-AED-AED4 (233-2334)
Fax: 617-724-8307

Dravet.org
P.O. Box 66599
Baltimore, MD   21239-6599
info@Dravet.org
http://dravet.org
Tel: 866-828-1843

Intractable Childhood Epilepsy Alliance
PO Box 365
6360 Shallowford Road
Lewisville, NC   27023
info@ice-epilepsy.org
http://www.ice-epilepsy.org
Tel: 336-946-1570
Fax: 336-946-1571

Hope for Hypothalamic Hamartomas (Hope for HH)
P. O. Box 721
Waddell, AZ   85355
admin@hopeforhh.org
http://hopeforhh.org/

RE Children's Project
79 Christie Hill Road
Darien, CT   06820
swohlberg@rechildrens.com
http://www.rechildrens.org
Tel: 917-971-2977

LGS Foundation
192 Lexington Avenue
Ste 216
New York, NY   10016
info@lgsfoundation.org
http://lgsfoundation.org/index.html
Tel: 212-802-1401