Epilepsy Organizations

Citizens United for Research in Epilepsy (CURE) 223 W. Erie Suite 28W Chicago, IL   60654 info@CUREepilepsy.org http://www.CUREepilepsy.org Tel: 312-255-1801 800-765-7118 Fax: 312-255-1809	Epilepsy Foundation 8301 Professional Place Landover, MD   20785-7223 postmaster@efa.org http://www.epilepsyfoundation.org Tel: 301-459-3700 800-EFA-1000 (332-1000) Fax: 301-577-2684
Epilepsy Institute 257 Park Avenue South New York, NY   10010 website@epilepsyinstitute.org http://www.epilepsyinstitute.org Tel: 212-677-8550 Fax: 212-677-5825	Family Caregiver Alliance/ National Center on Caregiving 180 Montgomery Street Suite 900 San Francisco, CA   94104 info@caregiver.org http://www.caregiver.org Tel: 415-434-3388 800-445-8106 Fax: 415-434-3508
National Council on Patient Information and Education 200-A Monroe Street Suite 201 Rockville, MD   20850 ncpie@ncpie.info http://www.talkaboutrx.org Tel: 301-340-3940 Fax: 301-340-3944	National Family Caregivers Association 10400 Connecticut Avenue Suite 500 Kensington, MD   20895-3944 info@thefamilycaregiver.org http://www.thefamilycaregiver.org Tel: 800-896-3650 Fax: 301-942-2302
National Organization for Rare Disorders (NORD) P.O. Box 1968 (55 Kenosia Avenue) Danbury, CT   06813-1968 orphan@rarediseases.org http://www.rarediseases.org Tel: 203-744-0100 Voice Mail 800-999-NORD (6673) Fax: 203-798-2291	International RadioSurgery Association 3002 N. Second Street Harrisburg, PA   17110 irsa@irsa.org http://www.irsa.org Tel: 717-260-9808 Fax: 717-260-9809
Charlie Foundation to Help Cure Pediatric Epilepsy 1223 Wilshire Blvd. Suite #815 Santa Monica, CA   90403 ketoman@aol.com http://www.charliefoundation.org Tel: 310-393-2347 Fax: 310-453-4585	Epilepsy Therapy Project P.O. Box 742 10. N. Pendleton Street Middleburg, VA   20118 info@epilepsytherapyproject.org http://www.epilepsy.com Tel: 540-687-8077 Fax: 540-687-8066
Antiepileptic Drug Pregnancy Registry Massachusetts General Hospital 121 Innerbelt Road Room 220 Somerville, MA   02143 info@aedpregnancyregistry.org http://www2.massgeneral.org/aed/ Tel: 888-AED-AED4 (233-2334) Fax: 617-724-8307	Dravet.org P.O. Box 797 Deale, MD   20751 info@Dravet.org http://dravet.org Tel: 443-607-8267
Intractable Childhood Epilepsy Alliance PO Box 365 6360 Shallowford Road Lewisville, NC   27023 info@ice-epilepsy.org http://www.ice-epilepsy.org Tel: 336-946-1570 Fax: 336-946-1571	Hope for Hypothalamic Hamartomas (Hope for HH) P. O. Box 721 Waddell, AZ   85355 admin@hopeforhh.org http://hopeforhh.org/
RE Children's Project 79 Christie Hill Road Darien, CT   06820 swohlberg@rechildrens.com www.rechildrens.org Tel: 917-971-2977