Dementia Organizations

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Alzheimer's Disease Education and Referral Center (ADEAR) National Institute on Aging P.O. Box 8250 Silver Spring, MD   20907-8250 adear@nia.nih.gov http://www.nia.nih.gov/alzheimers Tel: 1-800-438-4380 Fax: 301-495-3334	Alzheimer's Association 225 North Michigan Avenue Floor 17 Chicago, IL   60601-7633 info@alz.org http://www.alz.org Tel: 312-335-8700 1-800-272-3900 (24-hour helpline) TDD: 312-335-5886 Fax: 866.699.1246
Alzheimer's Foundation of America 322 Eighth Avenue 7th Floor New York, NY   10001 info@alzfdn.org http://www.alzfdn.org Tel: 866-AFA-8484 (232-8484) Fax: 646-638-1546	John Douglas French Alzheimer's Foundation 11620 Wilshire Blvd. Suite 270 Los Angeles, CA   90025 http://www.jdfaf.org Tel: 310-445-4650 Fax: 310-479-0516
Association for Frontotemporal Degeneration (AFTD) Radnor Station Building #2 Suite 320 290 King of Prussia Road Radnor, PA   19087 info@theaftd.org http://www.theaftd.org Tel: 267-514-7221 866-507-7222	National Organization for Rare Disorders (NORD) 55 Kenosia Avenue Danbury, CT   06810 orphan@rarediseases.org http://www.rarediseases.org Tel: 203-744-0100 Voice Mail 800-999-NORD (6673) Fax: 203-798-2291
Family Caregiver Alliance/ National Center on Caregiving 785 Market St. Suite 750 San Francisco, CA   94103 info@caregiver.org http://www.caregiver.org Tel: 415-434-3388 800-445-8106 Fax: 415-434-3508	National Institute of Mental Health (NIMH) National Institutes of Health, DHHS 6001 Executive Blvd. Rm. 8184, MSC 9663 Bethesda, MD   20892-9663 nimhinfo@nih.gov http://www.nimh.nih.gov Tel: 301-443-4513/866-415-8051 301-443-8431 (TTY) Fax: 301-443-4279
National Family Caregivers Association 10400 Connecticut Avenue Suite 500 Kensington, MD   20895-3944 info@thefamilycaregiver.org http://www.thefamilycaregiver.org Tel: 800-896-3650 Fax: 301-942-2302	Lewy Body Dementia Association 912 Killian Hill Road, S.W. Lilburn, GA   30047 lbda@lbda.org http://www.lbda.org Tel: Telephone: 404-935-6444 LBD Caregiver Link: 800-539-9767 Fax: 480-422-5434
Alzheimer’s Drug Discovery Foundation 57 West 57th Street Suite 904 New York, NY   10019 info@alzdiscovery.org http://www.alzdiscovery.org Tel: 212-901-8000 Fax: 212-901-8010	Creutzfeldt-Jakob Disease (CJD) Foundation Inc. 341 W. 38th Street, Suite 501 New York, NY   10018 help@cjdfoundation.org http://www.cjdfoundation.org Tel: 800-659-1991 Fax: 330-668-2474
CJD Aware! 2527 South Carrollton Ave. New Orleans, LA   70118-3013 cjdaware@iwon.com; info@cjdaware.com http://www.cjdaware.com Tel: 504-861-4627	Well Spouse Association 63 West Main Street Suite H Freehold, NJ   07728 info@wellspouse.org http://www.wellspouse.org Tel: 800-838-0879 732-577-8899 Fax: 732-577-8644
National Respite Network and Resource Center 800 Eastowne Drive Suite 105 Chapel Hill, NC   27514 http://www.archrespite.org Tel: 919-490-5577 x222 Fax: 919-490-4905	BrightFocus Foundation 22512 Gateway Center Drive Clarksburg, MD   20871 info@brightfocus.org http://www.brightfocus.org/alzheimers/ Tel: 1- 800-437-2423 Fax: 301-258-9454
National Hospice and Palliative Care Organization /Natl. Hospice Foundation 1731 King Street Alexandria, VA   22314 nhpco_info@nhpco.org http://www.nhpco.org Tel: 703-837-1500 Helpline: 800-658-8898 Fax: 703-837-1233