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Dandy-Walker Syndrome Organizations

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Dandy-Walker Alliance, Inc.
10325 Kensington Pkwy.
Suite 384
Kensington, MD   20895
comments@dandy-walker.org
http://www.dandy-walker.org
Tel: 877-Dandy-Walker (326-3992)

Hydrocephalus Association
4340 East West Highway
Suite 905
Bethesda, MD   20814
info@hydroassoc.org
http://www.hydroassoc.org
Tel: 301-202-3811 888-598-3789
Fax: 301-202-3813

March of Dimes
1275 Mamaroneck Avenue
White Plains, NY   10605
askus@marchofdimes.com
http://www.marchofdimes.com
Tel: 914-997-4488 888-MODIMES (663-4637)
Fax: 914-428-8203

National Hydrocephalus Foundation
12413 Centralia Road
Lakewood, CA   90715-1653
debbifields@nhfonline.org
http://nhfonline.org
Tel: 562-924-6666 888-857-3434

National Organization for Rare Disorders (NORD)
55 Kenosia Avenue
Danbury, CT   06810
orphan@rarediseases.org
http://www.rarediseases.org
Tel: 203-744-0100 Voice Mail 800-999-NORD (6673)
Fax: 203-798-2291

Pediatric Hydrocephalus Foundation
2004 Green Hollow Drive
Iselin, NJ   08830
info@hydrocephaluskids.org
http://www.HydrocephalusKids.org
Tel: 732-634-1283