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Cerebral Cavernous Malformation Organizations

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National Organization for Rare Disorders (NORD)
55 Kenosia Avenue
Danbury, CT   06810
orphan@rarediseases.org
http://www.rarediseases.org
Tel: 203-744-0100 Voice Mail 800-999-NORD (6673)
Fax: 203-798-2291

Angioma Alliance
520 W. 21st Street
Suite G2-411
Norfolk, VA   23517-1950
info@angiomaalliance.org
http://www.angiomaalliance.org
Tel: 866-HEAL-CCM (432-5226) 757-623-0615

Nevus Outreach, Inc
600 SE Delaware Ave
Suite 200
Bartlesville, OK   74
cschoessow@nevus.org
http://www.nevus.org
Tel: 877-426-3887 918-331-0595
Fax: 281-417-4020