Cerebral Cavernous Malformation Organizations

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National Organization for Rare Disorders (NORD) 55 Kenosia Avenue Danbury, CT   06810 orphan@rarediseases.org http://www.rarediseases.org Tel: 203-744-0100 Voice Mail 800-999-NORD (6673) Fax: 203-798-2291	Angioma Alliance 520 W. 21st Street Suite G2-411 Norfolk, VA   23517-1950 info@angiomaalliance.org http://www.angiomaalliance.org Tel: 866-HEAL-CCM (432-5226) 757-623-0615
Nevus Outreach, Inc 600 SE Delaware Ave Suite 200 Bartlesville, OK   74 cschoessow@nevus.org http://www.nevus.org Tel: 877-426-3887 918-331-0595 Fax: 281-417-4020