The Dementias: Hope Through Research

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 Where can I get more information?

For more information on neurological disorders or research programs funded by the National Institute of Neurological Disorders and Stroke, contact the Institute's Brain Resources and Information Network (BRAIN) at:

BRAIN
P.O. Box 5801
Bethesda, MD 20824
(800) 352-9424
http://www.ninds.nih.gov

Information also is available from the following organizations:

Column1	Column2
Alzheimer's Disease Education and Referral Center (ADEAR) National Institute on Aging P.O. Box 8250 Silver Spring, MD   20907-8250 adear@nia.nih.gov http://www.nia.nih.gov/alzheimers Tel: 1-800-438-4380 Fax: 301-495-3334	National Institute of Mental Health (NIMH) National Institutes of Health, DHHS 6001 Executive Blvd. Rm. 8184, MSC 9663 Bethesda, MD   20892-9663 nimhinfo@nih.gov http://www.nimh.nih.gov Tel: 301-443-4513/866-415-8051 301-443-8431 (TTY) Fax: 301-443-4279
Alzheimer's Association 225 North Michigan Avenue Floor 17 Chicago, IL   60601-7633 info@alz.org http://www.alz.org Tel: 312-335-8700 1-800-272-3900 (24-hour helpline) TDD: 312-335-5886 Fax: 866.699.1246	Alzheimer's Foundation of America 322 Eighth Avenue 7th Floor New York, NY   10001 info@alzfdn.org http://www.alzfdn.org Tel: 866-AFA-8484 (232-8484) Fax: 646-638-1546
National Organization for Rare Disorders (NORD) 55 Kenosia Avenue Danbury, CT   06810 orphan@rarediseases.org http://www.rarediseases.org Tel: 203-744-0100 Voice Mail 800-999-NORD (6673) Fax: 203-798-2291	Family Caregiver Alliance/ National Center on Caregiving 785 Market St. Suite 750 San Francisco, CA   94103 info@caregiver.org http://www.caregiver.org Tel: 415-434-3388 800-445-8106 Fax: 415-434-3508
Association for Frontotemporal Degeneration (AFTD) Radnor Station Building #2 Suite 320 290 King of Prussia Road Radnor, PA   19087 info@theaftd.org http://www.theaftd.org Tel: 267-514-7221 866-507-7222	National Family Caregivers Association 10400 Connecticut Avenue Suite 500 Kensington, MD   20895-3944 info@thefamilycaregiver.org http://www.thefamilycaregiver.org Tel: 800-896-3650 Fax: 301-942-2302
Well Spouse Association 63 West Main Street Suite H Freehold, NJ   07728 info@wellspouse.org http://www.wellspouse.org Tel: 800-838-0879 732-577-8899 Fax: 732-577-8644	National Respite Network and Resource Center 800 Eastowne Drive Suite 105 Chapel Hill, NC   27514 http://www.archrespite.org Tel: 919-490-5577 x222 Fax: 919-490-4905
BrightFocus Foundation 22512 Gateway Center Drive Clarksburg, MD   20871 info@brightfocus.org http://www.brightfocus.org/alzheimers/ Tel: 1- 800-437-2423 Fax: 301-258-9454	National Hospice and Palliative Care Organization /Natl. Hospice Foundation 1731 King Street Alexandria, VA   22314 nhpco_info@nhpco.org http://www.nhpco.org Tel: 703-837-1500 Helpline: 800-658-8898 Fax: 703-837-1233
Alzheimer’s Drug Discovery Foundation 57 West 57th Street Suite 904 New York, NY   10019 info@alzdiscovery.org http://www.alzdiscovery.org Tel: 212-901-8000 Fax: 212-901-8010	John Douglas French Alzheimer's Foundation 11620 Wilshire Blvd. Suite 270 Los Angeles, CA   90025 http://www.jdfaf.org Tel: 310-445-4650 Fax: 310-479-0516
Lewy Body Dementia Association 912 Killian Hill Road, S.W. Lilburn, GA   30047 lbda@lbda.org http://www.lbda.org Tel: Telephone: 404-935-6444 LBD Caregiver Link: 800-539-9767 Fax: 480-422-5434

"The Dementias: Hope Through Research," NINDS. Publication date April 2004.

NIH Publication No. 04-2252

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• Demencias: Esperanza en la Investigación

Prepared by:
Office of Communications and Public Liaison
National Institute of Neurological Disorders and Stroke
National Institutes of Health
Bethesda, MD 20892

NINDS health-related material is provided for information purposes only and does not necessarily represent endorsement by or an official position of the National Institute of Neurological Disorders and Stroke or any other Federal agency. Advice on the treatment or care of an individual patient should be obtained through consultation with a physician who has examined that patient or is familiar with that patient's medical history.

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Last updated May 1, 2013