The Dementias: Hope Through Research

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 Where can I get more information?

For more information on neurological disorders or research programs funded by the National Institute of Neurological Disorders and Stroke, contact the Institute's Brain Resources and Information Network (BRAIN) at:

BRAIN
P.O. Box 5801
Bethesda, MD 20824
(800) 352-9424
http://www.ninds.nih.gov

Information also is available from the following organizations:

Alzheimer's Disease Education and Referral Center (ADEAR) P.O. Box 8250 Silver Spring, MD   20907-8250 adear@nia.nih.gov http://www.alzheimers.nia.nih.gov Tel: 301-495-3311 800-438-4380 Fax: 301-495-3334	National Institute of Mental Health (NIMH) National Institutes of Health, DHHS 6001 Executive Blvd. Rm. 8184, MSC 9663 Bethesda, MD   20892-9663 nimhinfo@nih.gov http://www.nimh.nih.gov Tel: 301-443-4513/866-415-8051 301-443-8431 (TTY) Fax: 301-443-4279
Alzheimer's Association 225 North Michigan Avenue 17th Floor Chicago, IL   60601-7633 info@alz.org http://www.alz.org Tel: 312-335-8700 1-800-272-3900 (24-hour helpline) TDD: 312-335-5886 Fax: 866.699.1246 National voluntary health organization committed to finding a cure for Alzheimer’s and helping those affected by the disease.	Alzheimer's Foundation of America 322 Eighth Avenue 7th Floor New York, NY   10001 info@alzfdn.org http://www.alzfdn.org Tel: 866-AFA-8484 (232-8484) Fax: 646-638-1546 Works to provide optimal care and services to individuals confronting dementia and to their caregivers and families thruogh member organizations dedicated to improving quality of life.
National Organization for Rare Disorders (NORD) P.O. Box 1968 (55 Kenosia Avenue) Danbury, CT   06813-1968 orphan@rarediseases.org http://www.rarediseases.org Tel: 203-744-0100 Voice Mail 800-999-NORD (6673) Fax: 203-798-2291 Federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. Committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.	Family Caregiver Alliance/ National Center on Caregiving 180 Montgomery Street Suite 1100 San Francisco, CA   94104 info@caregiver.org http://www.caregiver.org Tel: 415-434-3388 800-445-8106 Fax: 415-434-3508 Supports and assists families and caregivers of adults with debilitating health conditions. Offers programs and consultation on caregiving issues at local, state, and national levels. Offers free publications and support online, including a national directory of publicly funded caregiver support programs.
Association for Frontotemporal Dementias (AFTD) 1616 Walnut Street Suite 1100 Philadelphia, PA   19103 info@FTD-Picks.org http://www.FTD-Picks.org Tel: 267-514-7221 866-507-7222 Non-profit organization that promotes and funds research into finding the cause and cure for frontotemporal dementias (FTD); provides information, education, and support to those affected by FTD and their caregivers; and sponsors professional health education programs related to FTD.	C-Mac Informational Services/Caregiver News [For Alzheimer's-Type Dementia Caregivers] 120 Clinton Lane Cookeville, TN   38501-8946 caregiver_cmi@hotmail.com http://www.caregivernews.org Nonprofit, tax-exempt, charitable organization that offers information about care for patients with Alzheimer’s-type dementia. Publishes and distributes a newsletter, cookbook, and the Caregiver’s Information Pack.
National Family Caregivers Association 10400 Connecticut Avenue Suite 500 Kensington, MD   20895-3944 info@thefamilycaregiver.org http://www.thefamilycaregiver.org Tel: 800-896-3650 Fax: 301-942-2302 Grassroots organization dedicated to supporting and improving the lives of America's family caregivers. Created to educate, support, empower, and advocate for the millions of Americans who care for their ill, aged, or disabled loved ones.	Well Spouse Association 63 West Main Street Suite H Freehold, NJ   07728 info@wellspouse.org http://www.wellspouse.org Tel: 800-838-0879 732-577-8899 Fax: 732-577-8644 International non-profit, volunteer-based organization whose mission is to provide emotional support to, raise consciousness about, and advocate for the spouses/partners of the chronically ill and/or disabled.
National Respite Network and Resource Center 800 Eastowne Drive Suite 105 Chapel Hill, NC   27514 http://www.archrespite.org Tel: 919-490-5577 x222 Fax: 919-490-4905 Information and referral service that assists and promotes the development of quality respite and crisis care programs; helps families locate respite and crisis care services in their communities; and sponsors advocacy and awareness efforts concerning respite care.	American Health Assistance Foundation 22512 Gateway Center Drive Clarksburg, MD   20871 info@ahaf.org http://www.ahaf.org/alzheimers/ Tel: 301-948-3244 800-437-AHAF (2423) Fax: 301-258-9454 Non-profit charitable organization dedicated to funding research and educating the public on Alzheimer's disease, glaucoma, and macular degeneration.
National Hospice and Palliative Care Organization /Natl. Hospice Foundation 1700 Diagonal Road Suite 625 Alexandria, VA   22314 nhpco_info@nhpco.org http://www.nhpco.org Tel: 703-837-1500 Helpline: 800-658-8898 Fax: 703-837-1233 Non-profit membership organization representing hospice and palliative care programs and professionals. Provides free referrals to the public for hospice listings across the United States and internationally. Distributes free packets of general information describing hospice services and the Medicare Hospice Benefit.	Alzheimer’s Drug Discovery Foundation (formerly, Institute for the Study of Aging) 1414 Avenue of the Americas Suite 1502 New York, NY   10019 ahorton@alzdiscovery.org http://www.alzdiscovery.org Tel: 212-935-2402 Fax: 212-935-2408 Public charity whose mission is to accelerate the discovery and development of drugs to prevent, treat, and cure Alzheimer's disease, related dementias, and cognitive aging.
John Douglas French Alzheimer's Foundation 11620 Wilshire Blvd. Suite 270 Los Angeles, CA   90025 jdfaf@earthlink.net http://www.jdfaf.org Tel: 310-445-4650 800-477-2243 Fax: 310-479-0516 Generates funds for Alzheimer’s research targeted at areas of research typically not supported by Federal agencies.	Lewy Body Dementia Association P.O. Box 451429 Atlanta, GA   31145-9429 lbda@lbda.org http://www.lewybodydementia.org Tel: Telephone: 404-935-6444 Helpline: 800-LEWYSOS (539-9767) Fax: 480-422-5434 Supports those affected by Lewy body dementias and promotes research for a cure. Sponsors education and outreach programs.

top "The Dementias: Hope Through Research," NINDS. Publication date April 2004.

NIH Publication No. 04-2252

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Prepared by:
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National Institute of Neurological Disorders and Stroke
National Institutes of Health
Bethesda, MD 20892

NINDS health-related material is provided for information purposes only and does not necessarily represent endorsement by or an official position of the National Institute of Neurological Disorders and Stroke or any other Federal agency. Advice on the treatment or care of an individual patient should be obtained through consultation with a physician who has examined that patient or is familiar with that patient's medical history.

All NINDS-prepared information is in the public domain and may be freely copied. Credit to the NINDS or the NIH is appreciated.

Last updated June 29, 2009