| National Organization for Rare Disorders (NORD) 55 Kenosia Avenue Danbury, CT 06810 orphan@rarediseases.org http://www.rarediseases.org Tel: 203-744-0100 Voice Mail 800-999-NORD (6673) Fax: 203-798-2291 |
United Leukodystrophy Foundation 224 North 2nd Street, Suite 2 DeKalb, IL 60115 office@ulf.org http://www.ulf.org Tel: 815-748-3211 800-728-5483 Fax: 815-748-0844 |