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Adrenoleukodystrophy Organizations


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National Organization for Rare Disorders (NORD)
55 Kenosia Avenue
Danbury, CT 06810
orphan@rarediseases.org
http://www.rarediseases.org
Tel: 203-744-0100; Voice Mail: 800-999-NORD (6673)
Fax: 203-798-2291

National Tay-Sachs and Allied Diseases Association
2001 Beacon Street
Suite 204
Boston, MA 02135
info@ntsad.org
http://www.ntsad.org
Tel: 800-90-NTSAD (906-8723)
Fax: 617-277-0134

United Leukodystrophy Foundation
224 North 2nd Street, Suite 2
DeKalb, IL 60115
office@ulf.org
http://www.ulf.org
Tel: 815-748-3211; 800-728-5483
Fax: 815-748-0844

Myelin Project
P.O. Box 39
Pacific Palisades, CA 90272
info@myelin.org
http://www.myelin.org
Tel: 800-869-3546; 310-459-1071
Fax: 310-230-4298

Global Foundation for Peroxisomal Disorders
5147 S. Harvard Avenue, Suite 181
Tulsa, OK 74135
contactus@thegfpd.org
http://www.thegfpd.org
Tel: 918-230-7713
Fax: 918-516-0227