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MDCC November 30, 2009 Agenda

Eighth Annual Meeting of the Muscular Dystrophy Coordinating Committee
Hyatt Regency Bethesda
One Bethesda Metro Center, Bethesda, MD
November 30, 2009

8:00-8:30 Continental Breakfast

8:30-8:45 Welcome, Introductions, and Conflict of Interest Statement
Story Landis, MDCC Chair, NINDS
John Porter, MDCC Executive Secretary, NINDS

8:45-9:15 NIH Annual Overview
John Porter, NINDS

9:15-9:45 Paul D. Wellstone Muscular Dystrophy Cooperative Research Center Network
Glen Nuckolls, NIAMS

9:45-10:20 Bringing Down the Barriers in Translational Medicine in Inherited Neuromuscular Diseases-TREAT-NMD/NIH Brussels Conference
Stephen Lynn, TREAT-NMD
(with comments from Conference participants Kurt Fischbeck, Amelie Gubitz, Glen Nuckolls, John Porter, and Anne Rutkowski)

10:20-10:35 Break

10:35-10:45 National Institute of Disability and Rehabilitation Research/Department of Education Report
Theresa San Agustin

10:45-11:05 Centers for Disease Control and Prevention Report
Edwin Trevathan, CDC

11:05-11:25 Myotonic Dystrophy Report
Shannon Lord, Patient Representative

11:25-12:00 Revisiting the MDCC Action Plan for the Muscular Dystrophies
John Porter, NINDS

12:00-12:30 Lunch

12:30-12:100 FSHD Report
Daniel Perez, FSH Society

12:100-1:10 Muscular Dystrophy Association Report
Valerie Cwik, MDA

1:10-1:30 Health Resources and Services Administration Report
Sara Copeland, HRSA

1:30-1:100 Congressionally Directed Medical Research Programs/Department of Defense Report
Marielena McGuire, DoD

1:100-2:05 Break

2:05-2:25 Congenital Muscular Dystrophy Report
Anne Rutkowski, CureCMD

2:25-2:45 Duchenne Muscular Dystrophy Report
Brian Denger, PPMD

2:45-3:10 Future Agendas and Directions for the MDCC
Story Landis, NINDS

3:10-3:40 Public Comment Session

3:40 Adjourn

Last updated December 27, 2013