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MDCC Roster


Guttmacher, Alan E, M.D., Chair, MDCC
Director
Eunice Kennedy Shriver National Institute of Child Health and Human Development
National Institutes of Health

Cwik, Valerie A. M.D.
Medical Director and Executive Vice President for Research
Muscular Dystrophy Association

Denger, Brian
Parent Advocate Coordinator, Parent Project Muscular Dystrophy

Katz, Stephen I., M.D., Ph.D.
Director
National Institute of Arthritis and Musculoskeletal and Skin Diseases
National Institutes of Health

Landis, Story C., Ph.D.
Director
National Institute of Neurological Disorders and Stroke
National Institutes of Health

Pariser, Anne Ruggles, M.D.
Associate Director for Rare Diseases
Office of New Drugs Center for Drug Evaluation and Research
Food and Drug Administration

Rutkowski, Anne M. M.D.
Co-Founder and Former Chairman, Cure CMD

Salzer, Wanda, M.D.,  COL
Director
Congressionally Directed Medical Research Programs
U.S. Army Medical Research and Materiel Command

San Agustin, M. Theresa B., M.D.
Program Officer
National Institute on Disability and Rehabilitation Research
Department of Education

Shurin, Susan Blakely, M.D.
Deputy Director
National Heart, Lung and Blood Institute
National Institutes of Health

Strickland, Bonnie B., Ph.D.
Division Director, Maternal and Child Health Bureau
Health Resources and Services Administration

Wald, Peter
Advocate
Myotonic Dystrophy

Vacant
Administration on Children and Families
Centers for Disease Control and Prevention
Public Member

Porter, John D., Ph.D.
Executive Secretary, MDCC
Program Director, Neuromuscular Disease
National Institute of Neurological Disorders and Stroke
National Institutes of Health

Last updated April 2, 2014